I can’t believe how fast the summer is going by. It seems it was just the beginning of July and me and my daughters, Kristie and Karlie, took a very memorable trip to Minneapolis. Just the three of us. First time ever.
We drove eight hours to get me on the wait list for a kidney. Since I am such a hard match I have a better chance in the States to find a kidney.
I had to go through tests at Fairview Southdale Hospital. Nothing crazy. An ultrasound of my heart, chest X-ray, meetings with doctors, 20 tubes of blood taken and more. Nothing I haven’t been through before.
I had to do a dialysis treatment while we were there. I wasn’t looking forward to that at all. I am so used to being my own nurse. I do Home Hemo Dialysis every other night and I’m in control of everything. I did a four hour treatment in a dialysis unit in Minneapolis away from the hospital and I couldn’t wait for the treatment to be over. Four hours goes by so slow when you are stuck sitting connected to a machine. That was actually the worst part of the trip.
All of the tests went really well. The doctors gave me more hope of finding a kidney down there. I left feeling extremely positive and hopeful.
They do things fast in Minneapolis. I was officially put on their waiting list three weeks after we got back to Winnipeg. My family was pretty excited. This is a huge opportunity that could change my life.
The reason I was able to get on the list is that I have been on dialysis for 16 years and have antibodies that make it really hard to find me a matching kidney. Not just anyone can get on there.
So now that I’m on the Minneapolis list I could get a call at any time and would have to get down there immediately.
Driving down to Minneapolis with my girls was a great experience. We did have fun but we were there for a very serious reason. But it was definitely worth it.
Even though I have been on dialysis for 16 years I think I’m doing reasonably well.
Sometimes I feel perfectly healthy until I see the machine that saves my life sitting in my bedroom and then I appreciate the reality. But I will keep fighting and stay healthy until my day comes. When I get that call.