Grandma Joan dedicated to kids with Down syndrome

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IT was early on Christmas Eve in 1998 when Joan Kolbauer got the call her first grandchild, a girl named Zoë, had been born.

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Hey there, time traveller!
This article was published 30/11/2015 (3837 days ago), so information in it may no longer be current.

IT was early on Christmas Eve in 1998 when Joan Kolbauer got the call her first grandchild, a girl named Zoë, had been born.

A few weeks later came another call from her daughter, Laura Lynn, telling her Zoë had been diagnosed with Down syndrome.

“By then we were completely in love with this precious baby but had no idea what the future held for her,” said Kolbauer, 72.

Ruth Bonneville / Winnipeg Free Press
‘She’s a bright light in our lives. She’s just a wonderful, wonderful child’ — Joan Kolbauer on her granddaughter Zoë
Ruth Bonneville / Winnipeg Free Press ‘She’s a bright light in our lives. She’s just a wonderful, wonderful child’ — Joan Kolbauer on her granddaughter Zoë

At the time of Zoë’s birth, Kolbauer knew nothing about Down syndrome. Since her granddaughter lives in California, Kolbauer wanted to be supportive of her daughter and son-in-law in spite of the distance.

She joined the Manitoba Down Syndrome Society in an effort to learn more about the genetic disorder. Soon, she was volunteering at events. In 2004, she joined the organization’s board of directors and immediately took on the role of treasurer.

While no longer on the board, Kolbauer still volunteers with the society.

She helps with registration at the annual See Me Beautiful conference, where educators and parents access and discuss information about learning strategies and best teaching practices for children who have Down syndrome.

Kolbauer also co-ordinates Baby Love gatherings, which are held each spring and fall in an effort to provide a forum for families with babies and young children who have Down syndrome.

The events allow parents and families to get to know one another while enjoying entertainment, activities and refreshments.

Such events are especially meaningful for Kolbauer.

“Volunteering has given me the opportunity to meet many wonderful families,” she said. “To see the kids grow up and succeed throughout the years continues to be the reason I am so dedicated to volunteering for all kids with Down syndrome.”

Through her involvement with the society, Kolbauer has attended numerous conferences across Canada related to Down syndrome, picking up the nickname, Grandma Joan, along the way.

She has learned a lot about Down syndrome.

It was all for Zoë, who turns 17 in a few weeks.

“She’s a bright light in our lives,” Kolbauer said.

“She’s just a wonderful, wonderful child.”

‘She’s a bright light in our lives. She’s just a wonderful, wonderful child’

— Joan Kolbauer on her granddaughter Zoë

Seeing Zoë’s abilities has shown Kolbauer what children with Down syndrome can achieve.

Zoë reads very well, has beautiful handwriting, does her homework without complaint, is popular with her peers, and is loved by all, Kolbauer said.

She takes golf lessons each year, participates in dance class, goes 10-pin bowling and for the second year in a row will be modelling clothes at an upcoming fundraiser in Palm Desert, Calif.

“She has certainly taught us to see the ability and not the disability in all children with challenges,” Kolbauer said.

In addition to her work with the society, Kolbauer is a 20-year volunteer in the life-enrichment program at River East Personal Care Home, where she participates in a weekly program and helps with special events and outings.

She has also volunteered for the last several years with the Winnipeg International Children’s Festival.

“I love all my volunteer work,” Kolbauer said. “It has made me a better person.”

 

If you know a special volunteer, please contact aaron.epp@gmail.com.

Aaron Epp

Aaron Epp
Reporter

Aaron Epp reports on business for the Free Press. After freelancing for the paper for a decade, he joined the staff full-time in 2024. Read more about Aaron.

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History

Updated on Monday, November 30, 2015 8:16 AM CST: Fixes cutline

Updated on Monday, November 30, 2015 9:50 AM CST: Fixes name

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