Down syndrome society offers support
Organization volunteers aim to help families travelling 'the same road'
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Hey there, time traveller!
This article was published 08/04/2019 (2613 days ago), so information in it may no longer be current.
Kris Yunker wasn’t looking to volunteer. Volunteering found her.
Yunker’s son, Taylor, was diagnosed with Down syndrome when he was born in 2014. The Manitoba Down Syndrome Society reached out to Yunker and her partner, so they began attending society events.
The organization provides support and information for individuals with Down syndrome, parents, professionals and other interested persons. It organizes a number of events each year, including a dinner and dance, an educational conference, hockey games and a fundraising walk.
“I took part in the community and I found I wanted to be a bigger part of the Down syndrome society,” says Yunker, a constable with the Winnipeg Police Service. “I was wanting to actually contribute.”
Two years ago, Yunker joined the society’s board of directors. Since then, she has taken over organizing its Baby Love events, which are held each spring and fall. They are informal gatherings for families with young children who were born with Down syndrome.
Yunker enjoys meeting new families.
“I just want them to feel supported on their journey with Down syndrome,” she says. “It’s very rewarding to be that support for the people who are going to travel the same road we did.”
Val Surbey knows first-hand what it’s like to receive that support. Surbey helped found the society in early 1991, about a year after she and her husband adopted their son, Tim, who was born with Down syndrome.
“At that time, there wasn’t anything in terms of support for families,” says Surbey, who works as an educational assistant. “We’ve met other families of individuals with Down syndrome, and it’s through them that we’ve made some really close friends. I really enjoy their company.”
Surbey has volunteered in a number of capacities over the years. She currently serves as president of the board of directors, a role that gives her something to do “pretty well every day.”
As much as she has given, Surbey also receives a lot of support as a result of her involvement with the society.
She recalls that when Tim was diagnosed with leukemia in 2013, his treatment prevented the family from attending the annual fundraising walk.
During an announcement at the beginning of the walk, the society dedicated the day to Tim. Thanks to smartphones and live streaming technology, the Surbeys were able to watch the dedication from Tim’s hospital room.
“That was really emotional,” Surbey recalls. “I think that was probably one of the most emotional times that I had with Tim and the Down syndrome society.”
Yunker says being involved with the Down syndrome society has helped her see the possibilities for Taylor, who she describes as “the light of our life.”
“He’s filled our hearts completely, and everyone who knows him falls in love with him,” Yunker says. “He’s going to change the world, just by being here, in a positive way. He already has.”
The society is looking for more volunteers, specifically social club support staff who can engage youth and young adults with Down syndrome. Anyone interested can apply by emailing brandy@manitobadownsyndromesociety.com.
If you know a special volunteer, please contact aaron.epp@gmail.com.
Aaron Epp reports on business for the Free Press. After freelancing for the paper for a decade, he joined the staff full-time in 2024. Read more about Aaron.
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